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92_HB5871
LRB9213312DJgcB
1 AN ACT in relation to public health.
2 Be it enacted by the People of the State of Illinois,
3 represented in the General Assembly:
4 Section 5. The Phenylketonuria Testing Act is amended by
5 adding Sections 1.5 and 4 as follows:
6 (410 ILCS 240/1.5 new)
7 Sec. 1.5. Definitions. In this Act:
8 "Accredited laboratory" means any laboratory accredited
9 under the federal Clinical Laboratory Improvement Act.
10 "Expanded screening" means screening for all genetic and
11 metabolic disorders, including but not limited to amino acid
12 disorders, organic acid disorders, fatty acid oxidation
13 disorders, and other abnormal profiles, in newborn infants
14 that can be detected through the use of a tandem mass
15 spectrometer.
16 "Tandem mass spectrometer" means an analytical instrument
17 used to detect numerous genetic and metabolic disorders at
18 one time.
19 (410 ILCS 240/4 new)
20 Sec. 4. Parental choice of screening laboratory.
21 (a) The parent or legal guardian of a newborn infant, or
22 the health care provider attending the newborn infant, may
23 choose to have expanded screening for metabolic and genetic
24 disorders performed at an accredited laboratory of his or her
25 choice. The screening may include screening for any disorders
26 required under this Act or the rules implementing this Act.
27 (b) If a parent, the legal guardian, or the health care
28 provider attending the newborn infant chooses to have
29 expanded screening for metabolic and genetic disorders
30 performed at an accredited laboratory of his or her choice,
-2- LRB9213312DJgcB
1 the Department of Public Health must accept the results of
2 that screening for any disorders required under this Act or
3 the rules implementing this Act and must ensure that those
4 results are included in the health records maintained by the
5 State.
6 Section 99. Effective date. This Act takes effect upon
7 becoming law.
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