HR0917 96TH GENERAL ASSEMBLY

HR0917 LRB096 20060 KXB 35571 r

HOUSE RESOLUTION

WHEREAS, Prader-Willi syndrome is a complex genetic disorder that occurs in approximately 1 out of every 15,000 births, and is the most commonly known genetic cause of life-threatening obesity; and

WHEREAS, Prader-Willi syndrome affects males and females with equal frequency and affects all races and ethnicities; and

WHEREAS, Prader-Willi syndrome causes an extreme and insatiable appetite, often resulting in morbid obesity, which is the major cause of death for individuals with the syndrome; and

WHEREAS, Prader-Willi syndrome also causes cognitive and learning disabilities, and behavioral difficulties, such as obsessive-compulsive disorder and difficulty controlling emotions; and

WHEREAS, The hunger, metabolic, and behavioral characteristics of Prader-Willi syndrome force affected individuals to require constant and lifelong supervision in a controlled environment; and

WHEREAS, Studies have shown that there is a high morbidity and mortality rate for individuals with Prader-Willi syndrome; and

WHEREAS, There is no known cure for Prader-Willi syndrome; and

WHEREAS, Early diagnosis of Prader-Willi syndrome allows families to access treatment, intervention services, and support from health professionals, advocacy organizations, and other families who are dealing with the syndrome; and

WHEREAS, Recently discovered treatments, such as human growth hormone, are improving the quality of life for individuals with the syndrome and offer new hope to families, but many difficult symptoms associated with Prader-Willi syndrome remain untreated; and

WHEREAS, Increased research into Prader-Willi syndrome can lead to a better understanding of the disorder, more effective treatments, and an eventual cure for Prader-Willi syndrome; and

WHEREAS, Increased research into Prader-Willi syndrome is likely to improve our understanding of common public health concerns, including childhood obesity and mental health; and

WHEREAS, Advocacy organizations have designated May as National Prader-Willi Syndrome Awareness Month; therefore, be it

RESOLVED, BY THE HOUSE OF REPRESENTATIVES OF THE NINETY-SIXTH GENERAL ASSEMBLY OF THE STATE OF ILLINOIS, that we support raising awareness and educating the public about Prader-Willi syndrome; applaud the efforts of advocates and organizations that encourage awareness, promote research, and provide education, support, and hope to those impacted by Prader-Willi syndrome; recognize the commitment of parents, families, researchers, health professionals, and others dedicated to finding an effective treatment and eventual cure for Prader-Willi syndrome; support increased funding for research into the causes, treatment, and cure for Prader-Willi syndrome; and expresses support for the designation of a Prader-Willi Syndrome Awareness Month in the State of Illinois.