PUB HLTH-PHENYLKETONURIA TEST Senate SponsorsSen. Dale A. Righter-Carol Ronen-M. Maggie Crotty-Christine Radogno House Sponsors(Rep. JoAnn D. Osmond-David E. Miller-Patricia R. Bellock-Kathleen A. Ryg-Chapin Rose, Jil Tracy, Carolyn H. Krause, Ruth Munson, Tom Cross, Naomi D. Jakobsson, Elizabeth Coulson, Suzanne Bassi, Mark H. Beaubien, Jr., Mary E. Flowers, Angelo Saviano and Renée Kosel) 11/5/2007SenatePublic Act . . . . . . . . . 95-0695 New Act30 ILCS 105/8h410 ILCS 240/2from Ch. 111 1/2, par. 4904Creates the Genetic and Metabolic Diseases Advisory Committee Act. Provides that the Director of Public Health shall create the Genetic and Metabolic Diseases Advisory Committee to advise the Department of Public Health regarding issues relevant to newborn screenings of metabolic diseases. Amends the State Finance Act to exempt the Metabolic Screening and Treatment Fund from transfers made by the Governor to the General Revenue Fund. Amends the Phenylketonuria Testing Act. Provides that beginning July 1, 2008, the Department of Public Health shall provide all newborns with expanded screening tests for the presence of Lysosomal Storage Disorders known as Krabbe, Pompe, Gaucher, Fabry, and Niemann-Pick. Effective immediately.Senate Floor Amendment No. 4 Makes a technical correction. Provides that 6 months following the registration of the necessary reagents with the federal Food and Drug Administration and the Centers for Disease Control and Prevention has available quality assurance testing methodology for these processes (instead of July 1, 2008), the Department of Public Health shall provide all newborns with expanded screening tests for the presence of Lysosomal Storage Disorders known as Krabbe, Pompe, Gaucher, Fabry, and Niemann-Pick.House Amendment No. 1 Adds reference to:410 ILCS 240/0.01from Chap. 111 1/2, par. 4902.9Reinserts the contents of the engrossed bill with the following changes. Provides that the members of the Genetic and Metabolic Diseases Advisory Committee shall be appointed by the Director of Public Health (instead of the Director of Public Health and the Governor). Deletes language specifying the length of each members' term of membership, reappointment to the Committee following consecutive terms, member requirements for subcommittee or special project participation, and the appointment of ex officio members. Changes the name of the Phenylketonuria Testing Act to the Metabolic Disorder Testing Act. Provides that in accordance with the timetable specified in the provision, The Department of Public Health shall provide all newborns with expanded screening tests for the presence of certain Lysosomal Storage Disorders known as Krabbe, Pompe, Gaucher, Fabry, and Niemann-Pick. Provides that the testing shall begin within 6 months following the occurrence of all of the following: (i) the registration with the federal Food and Drug Administration of the necessary reagents; (ii) the availability of the necessary reagents from the Centers for Disease Control and Prevention; (iii) the availability of quality assurance testing methodology for these processes; and (iv) the acquisition and installment by the Department of the equipment necessary to implement the expanded screening tests. Provides that it is the goal of the Act that the expanded screening for the specified Lysosomal Storage Disorders begins within 3 years after the effective date of the Act. Provides that the Department is authorized to implement an additional fee for the screening prior to beginning the testing in order to accumulate the resources for start-up and other costs associated with implementation of the screening and thereafter to support the costs associated with screening and follow-up programs for the specified Lysosomal Storage Disorders. Provides that the Department shall supply the necessary metabolic treatment formulas where practicable for diagnosed cases of amino acid metabolism disorders, including phenylketonuria, organic acid and fatty acid oxidation disorders for as long as medically indicated, when the product is not available through other State agencies. Effective immediately.House Amendment No. 2 Provides that ex-officio members may be appointed to the Genetic and Metabolic Diseases Advisory Committee, but shall not have voting privileges. Changes the name of the Phenylketonuria Testing Act to the Newborn Metabolic Screening Act (instead of the Metabolic Disorder Testing Act). Makes a technical correction. 2/9/2007SenateFiled with Secretary by Sen. Dale A. Righter 2/9/2007SenateFirst Reading 2/9/2007SenateReferred to Rules 2/9/2007SenateAdded as Chief Co-Sponsor Sen. Carol Ronen 2/9/2007SenateAdded as Chief Co-Sponsor Sen. M. Maggie Crotty 2/21/2007SenateAssigned to Public Health 3/8/2007SenateSenate Committee Amendment No. 1 Filed with Secretary by Sen. Dale A. Righter 3/8/2007SenateSenate Committee Amendment No. 1 Referred to Rules 3/14/2007SenateDo Pass Public Health; 011-000-000 3/14/2007SenatePlaced on Calendar Order of 2nd Reading March 15, 2007 3/14/2007SenateSenate Floor Amendment No. 2 Filed with Secretary by Sen. Dale A. Righter 3/14/2007SenateSenate Floor Amendment No. 2 Referred to Rules 3/20/2007SenateSecond Reading 3/20/2007SenatePlaced on Calendar Order of 3rd Reading March 21, 2007 3/20/2007SenateSenate Floor Amendment No. 3 Filed with Secretary by Sen. Dale A. Righter 3/20/2007SenateSenate Floor Amendment No. 3 Referred to Rules 3/23/2007SenateSenate Floor Amendment No. 4 Filed with Secretary by Sen. Dale A. Righter 3/23/2007SenateSenate Floor Amendment No. 4 Referred to Rules 3/27/2007SenateSenate Floor Amendment No. 4 Rules Refers to Public Health 3/28/2007SenateSenate Floor Amendment No. 4 Recommend Do Adopt Public Health; 009-000-001 3/30/2007SenateRule 2-10 Third Reading Deadline Established As May 31, 2007 4/20/2007SenateRecalled to Second Reading 4/20/2007SenateSenate Floor Amendment No. 4 Adopted; Righter 4/20/2007SenatePlaced on Calendar Order of 3rd Reading 4/20/2007SenateThird Reading - Passed; 058-000-000 4/20/2007SenateSenate Committee Amendment No. 1 Tabled Pursuant to Rule 5-4(a) 4/20/2007SenateSenate Floor Amendment No. 2 Tabled Pursuant to Rule 5-4(a) 4/20/2007SenateSenate Floor Amendment No. 3 Tabled Pursuant to Rule 5-4(a) 4/23/2007HouseArrived in House 4/23/2007HousePlaced on Calendar Order of First Reading 4/23/2007HouseChief House Sponsor Rep. JoAnn D. Osmond 4/24/2007HouseFirst Reading 4/24/2007HouseReferred to Rules Committee 4/26/2007HouseAdded Alternate Chief Co-Sponsor Rep. David E. Miller 4/30/2007HouseAssigned to Human Services Committee 5/2/2007HouseAdded Alternate Chief Co-Sponsor Rep. Patricia R. Bellock 5/2/2007HouseAdded Alternate Chief Co-Sponsor Rep. Kathleen A. Ryg 5/2/2007HouseAdded Alternate Chief Co-Sponsor Rep. Chapin Rose 5/2/2007HouseAdded Alternate Co-Sponsor Rep. Jil Tracy 5/2/2007HouseAdded Alternate Co-Sponsor Rep. Carolyn H. Krause 5/2/2007HouseAdded Alternate Co-Sponsor Rep. Ruth Munson 5/2/2007HouseAdded Alternate Co-Sponsor Rep. Tom Cross 5/2/2007HouseAdded Alternate Co-Sponsor Rep. Naomi D. Jakobsson 5/2/2007HouseAdded Alternate Co-Sponsor Rep. Elizabeth Coulson 5/2/2007HouseAdded Alternate Co-Sponsor Rep. Suzanne Bassi 5/2/2007HouseAdded Alternate Co-Sponsor Rep. Mark H. Beaubien, Jr. 5/2/2007HouseAdded Alternate Co-Sponsor Rep. Mary E. Flowers 5/2/2007HouseAdded Alternate Co-Sponsor Rep. Angelo Saviano 5/2/2007HouseAdded Alternate Co-Sponsor Rep. Renée Kosel 5/8/2007HouseHouse Amendment No. 1 Filed with Clerk by Human Services Committee 5/8/2007HouseHouse Amendment No. 1 Adopted in Human Services Committee; by Voice Vote 5/8/2007HouseDo Pass as Amended / Short Debate Human Services Committee; 008-000-000 5/9/2007HousePlaced on Calendar 2nd Reading - Short Debate 5/10/2007HouseHouse Amendment No. 2 Filed with Clerk by Rep. JoAnn D. Osmond 5/10/2007HouseHouse Amendment No. 2 Referred to Rules Committee 5/14/2007HouseHouse Amendment No. 2 Recommends Be Adopted Rules Committee; 005-000-000 5/24/2007HouseSecond Reading - Short Debate 5/24/2007HouseHouse Amendment No. 2 Adopted by Voice Vote 5/24/2007HousePlaced on Calendar Order of 3rd Reading - Short Debate 5/31/2007HouseThird Reading - Short Debate - Passed 116-000-000 5/31/2007SenateSecretary's Desk - Concurrence House Amendment(s) 01,02 5/31/2007SenatePlaced on Calendar Order of Concurrence House Amendment(s) 01,02 - June 1, 2007 5/31/2007SenateHouse Amendment No. 1 Motion to Concur Filed with Secretary Sen. Dale A. Righter 5/31/2007SenateHouse Amendment No. 1 Motion to Concur Referred to Rules 5/31/2007SenateHouse Amendment No. 2 Motion to Concur Filed with Secretary Sen. Dale A. Righter 5/31/2007SenateHouse Amendment No. 2 Motion to Concur Referred to Rules 8/7/2007SenateHouse Amendment No. 1 Motion to Concur Rules Referred to Public Health 8/7/2007SenateHouse Amendment No. 2 Motion to Concur Rules Referred to Public Health 8/8/2007SenateHouse Amendment No. 1 Motion To Concur Recommended Do Adopt Public Health; 009-000-000 8/8/2007SenateHouse Amendment No. 2 Motion To Concur Recommended Do Adopt Public Health; 009-000-000 8/8/2007SenateAdded as Chief Co-Sponsor Sen. Christine Radogno 8/8/2007SenateHouse Amendment No. 1 3/5 Vote Required 8/8/2007SenateHouse Amendment No. 1 Senate Concurs 055-000-000 8/8/2007SenateHouse Amendment No. 2 3/5 Vote Required 8/8/2007SenateHouse Amendment No. 2 Senate Concurs 055-000-000 8/8/2007SenatePassed Both Houses 9/6/2007SenateSent to the Governor 11/5/2007SenateGovernor Approved 11/5/2007SenateEffective Date November 5, 2007 11/5/2007SenatePublic Act . . . . . . . . . 95-0695