NEWBORN SCREENING-DUCHENNE MD Senate SponsorsSen. Julie A. Morrison, Dave Syverson, Tom Bennett, Laura Fine, Karina Villa-Laura M. Murphy-Ram Villivalam, Sally J. Turner and Cristina Castro House Sponsors(Rep. Anna Moeller, Michelle Mussman, Diane Blair-Sherlock and Emanuel "Chris" Welch) 8/9/2024SenatePublic Act . . . . . . . . . 103-0909 410 ILCS 240/3.6 new Amends the Newborn Metabolic Screening Act. Requires the Department of Public Health to provide all newborns with screening tests for the presence of Duchenne muscular dystrophy. Requires the testing to begin within 6 months following the occurrence of specified milestones. Allows the Department to require payment of an additional fee for the provision of Duchenne muscular dystrophy screening tests. Contains other provisions. Effective immediately.Senate Committee Amendment No. 1 Adds reference to:305 ILCS 5/5-5Amends the Illinois Public Aid Code. Provides that, notwithstanding any other provision of the Code, the medical assistance program shall, subject to federal approval, also reimburse hospitals for costs associated with all newborn screening tests added on and after the effective date of the amendatory Act to the Newborn Metabolic Screening Act and required to be performed under that Act at a rate not less than the fee charged by the Department of Public Health.House Committee Amendment No. 1 Further amends the Newborn Metabolic Screening Act. Makes subject to appropriation the requirement that the Department of Public Health provide all newborns with screening tests for the presence of Duchenne muscular dystrophy. Further amends the Medical Assistance Article of the Illinois Public Aid Code. Makes subject to appropriation the requirement that the Department of Healthcare and Family Services reimburse hospitals for costs associated with all newborn screening tests for the presence of Duchenne muscular dystrophy. 1/10/2024SenateFiled with Secretary by Sen. Julie A. Morrison 1/10/2024SenateFirst Reading 1/10/2024SenateReferred to Assignments 1/24/2024SenateAssigned to Public Health 1/31/2024SenateAdded as Co-Sponsor Sen. Dave Syverson 2/6/2024SenateAdded as Co-Sponsor Sen. Tom Bennett 2/13/2024SenateAdded as Co-Sponsor Sen. Laura Fine 2/29/2024SenateAdded as Co-Sponsor Sen. Karina Villa 3/5/2024SenateAdded as Chief Co-Sponsor Sen. Laura M. Murphy 3/7/2024SenateAdded as Chief Co-Sponsor Sen. Ram Villivalam 3/7/2024SenateSenate Committee Amendment No. 1 Filed with Secretary by Sen. Julie A. Morrison 3/7/2024SenateSenate Committee Amendment No. 1 Referred to Assignments 3/12/2024SenateSenate Committee Amendment No. 1 Assignments Refers to Public Health 3/12/2024SenateSenate Committee Amendment No. 1 Adopted 3/13/2024SenateDo Pass as Amended Public Health; 008-000-000 3/13/2024SenatePlaced on Calendar Order of 2nd Reading March 14, 2024 3/14/2024SenateSecond Reading 3/14/2024SenatePlaced on Calendar Order of 3rd Reading March 20, 2024 4/9/2024SenateAdded as Co-Sponsor Sen. Sally J. Turner 4/10/2024SenatePlaced on Calendar Order of 3rd Reading ** 4/12/2024SenateThird Reading - Passed; 059-000-000 4/12/2024HouseArrived in House 4/12/2024HouseChief House Sponsor Rep. Anna Moeller 4/15/2024HouseFirst Reading 4/15/2024HouseReferred to Rules Committee 4/18/2024HouseAdded Alternate Co-Sponsor Rep. Michelle Mussman 4/18/2024HouseAdded Alternate Co-Sponsor Rep. Diane Blair-Sherlock 4/24/2024HouseAssigned to Appropriations-Health & Human Services Committee 5/3/2024HouseCommittee/Final Action Deadline Extended-9(b) May 24, 2024 5/7/2024HouseHouse Committee Amendment No. 1 Filed with Clerk by Rep. Anna Moeller 5/7/2024HouseHouse Committee Amendment No. 1 Referred to Rules Committee 5/13/2024HouseHouse Committee Amendment No. 1 Rules Refers to Appropriations-Health & Human Services Committee 5/16/2024HouseHouse Committee Amendment No. 1 Adopted in Appropriations-Health & Human Services Committee; by Voice Vote 5/16/2024HouseDo Pass as Amended / Short Debate Appropriations-Health & Human Services Committee; 022-000-000 5/16/2024HousePlaced on Calendar 2nd Reading - Short Debate 5/16/2024HouseSecond Reading - Short Debate 5/16/2024HouseHeld on Calendar Order of Second Reading - Short Debate 5/21/2024HouseAdded Alternate Co-Sponsor Rep. Emanuel "Chris" Welch 5/21/2024HousePlaced on Calendar Order of 3rd Reading - Short Debate 5/21/2024HouseThird Reading - Short Debate - Passed 113-000-000 5/21/2024SenateSecretary's Desk - Concurrence House Amendment(s) 1 5/21/2024SenatePlaced on Calendar Order of Concurrence House Amendment(s) 1 - May 21, 2024 5/23/2024SenateHouse Committee Amendment No. 1 Motion to Concur Filed with Secretary Sen. Julie A. Morrison 5/23/2024SenateHouse Committee Amendment No. 1 Motion to Concur Referred to Assignments 5/23/2024SenateHouse Committee Amendment No. 1 Motion to Concur Assignments Referred to Public Health 5/23/2024SenateHouse Committee Amendment No. 1 Motion To Concur Recommended Do Adopt Public Health; 007-000-000 5/24/2024SenateHouse Committee Amendment No. 1 Senate Concurs 059-000-000 5/24/2024SenateSenate Concurs 5/24/2024SenatePassed Both Houses 5/24/2024SenateAdded as Co-Sponsor Sen. Cristina Castro 6/21/2024SenateSent to the Governor 8/9/2024SenateGovernor Approved 8/9/2024SenateEffective Date August 9, 2024 8/9/2024SenatePublic Act . . . . . . . . . 103-0909