SICKLE CELL TREATMENT PROGRAM Senate SponsorsSen. Mattie Hunter-Christopher Belt-Jacqueline Y. Collins, Robert Peters, Laura Fine, David Koehler, Napoleon Harris, III, Patrick J. Joyce, Rachelle Crowe, Julie A. Morrison-Kimberly A. Lightford and Elgie R. Sims, Jr. 1/13/2021SenateSession Sine Die New Act30 ILCS 105/5from Ch. 127, par. 14130 ILCS 105/5.930 newCreates the Sickle Cell Prevention, Care, and Treatment Program Act. Requires the Department of Healthcare and Family Services to establish a program for the purpose of providing for the prevention, care, and treatment of sickle cell disease and for educational programs concerning the disease. Requires the Department to: (1) develop application criteria and standards of eligibility for groups or organizations that apply for funds under the program; (2) develop standards for determining eligibility for individuals requesting care and treatment for sickle cell disease under the program; and (3) make available grants to groups and organizations who meet the eligibility standards set by the Department. Provides that the highest priority for grants shall be accorded to established sickle cell disease community-based organizations, and priority shall be given to ensuring the establishment of sickle cell disease centers in underserved areas that have a higher population of sickle cell disease patients. Provides that the program must: (i) increase access to health care, mental health resources, and pain management therapies for individuals with sickle cell disease; (ii) provide counseling to any individual, at no cost, concerning sickle cell disease and the sickle cell trait; (iii) provide for the establishment of additional sickle cell disease infusion centers; and (iv) provide for the development of a sickle cell disease educational outreach program. Requires the Department to conduct a study to determine the prevalence, impact, and needs of individuals with sickle cell disease and the sickle cell trait in Illinois. Amends the State Finance Act. Creates the Sickle Cell Chronic Disease Fund.Senate Committee Amendment No. 1 Deletes reference to:30 ILCS 105/5Replaces everything after the enacting clause. Creates the Sickle Cell Prevention, Care, and Treatment Program Act. Requires the Department of Healthcare and Family Services to establish a grant program for the purpose of providing for the prevention, care, and treatment of sickle cell disease and for educational programs concerning the disease. Requires the Department to: (1) develop application criteria and standards of eligibility for groups or organizations that apply for funds under the program; and (2) make available grants to groups and organizations who meet the eligibility standards set by the Department. Provides that the highest priority for grants shall be accorded to established sickle cell disease community-based organizations, and priority shall be given to ensuring the establishment of sickle cell disease centers in underserved areas that have a higher population of sickle cell disease patients. Requires the Department to determine the maximum amount available for each grant; determine policies for the expiration and renewal of grants; require that all grant funds be used for the purpose of prevention, care, and treatment of sickle cell disease or for educational programs concerning the disease; and develop a sickle cell disease educational outreach program that includes the dissemination of educational materials to specified persons and institutions. Permits the Department to contract with an entity to implement the sickle cell disease educational outreach program. Requires the Department to adopt rules. Requires the Department to conduct a study to determine the prevalence, impact, and needs of individuals with sickle cell disease and the sickle cell trait in Illinois. Provides that implementation of the Act is subject to appropriation. Amends the State Finance Act. Creates the Sickle Cell Chronic Disease Fund. 2/6/2020SenateFiled with Secretary by Sen. Mattie Hunter 2/6/2020SenateFirst Reading 2/6/2020SenateReferred to Assignments 2/11/2020SenateAssigned to Public Health 2/14/2020SenateAdded as Chief Co-Sponsor Sen. Christopher Belt 2/14/2020SenateAdded as Chief Co-Sponsor Sen. Jacqueline Y. Collins 2/18/2020SenateAdded as Co-Sponsor Sen. Robert Peters 2/18/2020SenatePostponed - Public Health 2/19/2020SenateAdded as Co-Sponsor Sen. Laura Fine 2/19/2020SenateAdded as Co-Sponsor Sen. David Koehler 2/19/2020SenateAdded as Co-Sponsor Sen. Napoleon Harris, III 2/25/2020SenatePostponed - Public Health 2/25/2020SenateAdded as Co-Sponsor Sen. Patrick J. Joyce 2/25/2020SenateAdded as Co-Sponsor Sen. Rachelle Crowe 2/25/2020SenateAdded as Co-Sponsor Sen. Julie A. Morrison 2/28/2020SenateSenate Committee Amendment No. 1 Filed with Secretary by Sen. Mattie Hunter 2/28/2020SenateSenate Committee Amendment No. 1 Referred to Assignments 3/3/2020SenateAdded as Chief Co-Sponsor Sen. Kimberly A. Lightford 3/3/2020SenateSenate Committee Amendment No. 1 Assignments Refers to Public Health 3/3/2020SenateSenate Committee Amendment No. 1 Adopted 3/4/2020SenateDo Pass as Amended Public Health; 010-000-000 3/4/2020SenatePlaced on Calendar Order of 2nd Reading March 5, 2020 3/5/2020SenateAdded as Co-Sponsor Sen. Elgie R. Sims, Jr. 3/5/2020SenateSecond Reading 3/5/2020SenatePlaced on Calendar Order of 3rd Reading March 18, 2020 3/25/2020SenateRule 2-10 Third Reading/Passage Deadline Established As May 7, 2020 4/12/2020SenatePursuant to Senate Rule 3-9(b) / Referred to Assignments 4/23/2020SenateRule 2-10 Third Reading/Passage Deadline Established As May 15, 2020 4/30/2020SenateRule 2-10 Third Reading/Passage Deadline Established As May 22, 2020 5/7/2020SenateRule 2-10 Third Reading/Passage Deadline Established As May 29, 2020 5/15/2020SenateRule 2-10 Third Reading/Passage Deadline Established As May 31, 2020 1/13/2021SenateSession Sine Die