HEALTH-TECH Senate SponsorsSen. Julie A. Morrison-Michael Connelly and Thomas Cullerton House Sponsors(Rep. Camille Y. Lilly-Daniel Swanson-Michael P. McAuliffe-Mark Batinick, Frances Ann Hurley, Patricia R. Bellock, Laura Fine, Robyn Gabel, Michelle Mussman and Nicholas K Smith) 8/14/2018SenatePublic Act . . . . . . . . . 100-0864 405 ILCS 40/0.01from Ch. 91 1/2, par. 1150Amends the Protection and Advocacy for Persons with Developmental Disabilities Act. Makes a technical change in a Section concerning the short title.Senate Floor Amendment No. 1 Deletes reference to:405 ILCS 40/0.01Adds reference to:410 ILCS 240/3.35 newReplaces everything after the enacting clause. Amends the Newborn Metabolic Screening Act. Requires the Department of Public Health to provide all newborns with screening tests for the presence of spinal muscular atrophy beginning on the earlier of January 1, 2019 or within 6 months after specified events have occurred. Provides that the Department is authorized to implement an additional fee for the screening no sooner than 6 months prior to beginning the testing in order to accumulate the resources for start-up and other costs associated with implementation of the screening and thereafter to support the costs associated with screening and follow-up programs for spinal muscular atrophy. Provides that the Department may adopt emergency rules to implement these provisions. Effective immediately.Senate Floor Amendment No. 2 Deletes reference to:405 ILCS 40/0.01Adds reference to:5 ILCS 100/5-45from Ch. 127, par. 1005-45410 ILCS 240/3.35 newReplaces everything after the enacting clause. Amends the Newborn Metabolic Screening Act. Requires the Department of Public Health to provide all newborns with a screening test for spinal muscular atrophy using a method that determines the presence or absence of the intact or normal SMN1 gene, beginning on the earlier of July 1, 2020 or within 6 months after specified events have occurred. Provides that the Department is authorized to implement an additional fee for the screening upon the effective date of the amendatory Act in order to accumulate the resources for start-up and other costs associated with implementation of the screening and thereafter to support the costs associated with screening. Provides that if the Department has not implemented statewide screening for spinal muscular atrophy within 36 months after the effective date of the amendatory Act, then the Department shall cease collecting any additional fees related to the screening. Provides that the Department may adopt emergency rules to implement these provisions. Amends the Illinois Administrative Procedure Act to provide for emergency rulemaking. Effective immediately. 1/24/2017SenateFiled with Secretary by Sen. John J. Cullerton 1/24/2017SenateFirst Reading 1/24/2017SenateReferred to Assignments 3/9/2017SenateAssigned to Executive 3/16/2017SenateDo Pass Executive; 014-000-000 3/16/2017SenatePlaced on Calendar Order of 2nd Reading March 28, 2017 3/28/2017SenateSecond Reading 3/28/2017SenatePlaced on Calendar Order of 3rd Reading March 29, 2017 4/25/2017SenateRe-referred to Assignments 10/18/2017SenateApproved for Consideration Assignments 10/18/2017SenatePlaced on Calendar Order of 3rd Reading 10/20/2017SenateChief Sponsor Changed to Sen. Julie A. Morrison 11/6/2017SenateSenate Floor Amendment No. 1 Filed with Secretary by Sen. Julie A. Morrison 11/6/2017SenateSenate Floor Amendment No. 1 Referred to Assignments 11/7/2017SenateSenate Floor Amendment No. 1 Assignments Refers to Public Health 11/7/2017SenateSenate Floor Amendment No. 1 Postponed - Public Health 11/8/2017SenateSenate Floor Amendment No. 1 Recommend Do Adopt Public Health; 006-000-000 11/8/2017SenateAdded as Chief Co-Sponsor Sen. Michael Connelly 12/10/2017SenatePursuant to Senate Rule 3-9(b) / Referred to Assignments 12/10/2017SenateSenate Floor Amendment No. 1 Pursuant to Senate Rule 3-9(b) / Referred to Assignments 1/30/2018SenateApproved for Consideration Assignments 1/30/2018SenatePlaced on Calendar Order of 3rd Reading 1/30/2018SenateSenate Floor Amendment No. 1 Be Approved for Consideration Assignments 2/5/2018SenateSenate Floor Amendment No. 2 Filed with Secretary by Sen. Julie A. Morrison 2/5/2018SenateSenate Floor Amendment No. 2 Referred to Assignments 2/6/2018SenateSenate Floor Amendment No. 2 Assignments Refers to Public Health 2/7/2018SenateSenate Floor Amendment No. 2 Recommend Do Adopt Public Health; 008-000-000 2/15/2018SenateRecalled to Second Reading 2/15/2018SenateSenate Floor Amendment No. 1 Adopted; Morrison 2/15/2018SenateSenate Floor Amendment No. 2 Adopted; Morrison 2/15/2018SenatePlaced on Calendar Order of 3rd Reading February 20, 2018 2/21/2018SenateAdded as Co-Sponsor Sen. Thomas Cullerton 2/21/2018SenateThird Reading - Passed; 051-000-000 2/21/2018HouseArrived in House 2/21/2018HouseChief House Sponsor Rep. Gregory Harris 2/27/2018HouseFirst Reading 2/27/2018HouseReferred to Rules Committee 2/28/2018HouseAdded Alternate Chief Co-Sponsor Rep. Daniel Swanson 2/28/2018HouseAdded Alternate Chief Co-Sponsor Rep. Michael P. McAuliffe 2/28/2018HouseAdded Alternate Chief Co-Sponsor Rep. Mark Batinick 2/28/2018HouseAlternate Chief Sponsor Changed to Rep. Camille Y. Lilly 4/18/2018HouseAdded Alternate Co-Sponsor Rep. Frances Ann Hurley 4/26/2018HouseAssigned to Human Services Committee 5/9/2018HouseDo Pass / Short Debate Human Services Committee; 012-000-000 5/9/2018HousePlaced on Calendar 2nd Reading - Short Debate 5/9/2018HouseAdded Alternate Co-Sponsor Rep. Patricia R. Bellock 5/16/2018HouseSecond Reading - Short Debate 5/16/2018HousePlaced on Calendar Order of 3rd Reading - Short Debate 5/17/2018HouseThird Reading - Short Debate - Passed 113-000-000 5/17/2018SenatePassed Both Houses 5/17/2018HouseAdded Alternate Co-Sponsor Rep. Laura Fine 5/17/2018HouseAdded Alternate Co-Sponsor Rep. Robyn Gabel 5/17/2018HouseAdded Alternate Co-Sponsor Rep. Michelle Mussman 5/17/2018HouseAdded Alternate Co-Sponsor Rep. Nicholas K Smith 6/15/2018SenateSent to the Governor 8/14/2018SenateGovernor Approved 8/14/2018SenateEffective Date August 14, 2018 8/14/2018SenatePublic Act . . . . . . . . . 100-0864